Our Mission
To find treatments and a cure for Chopra-Amiel-Gordon Syndrome while fostering a global CAGS community.
Our Vision
A world where individuals affected by Chopra-Amiel-Gordon Syndrome have access to effective treatments and a supportive global network.
Meet the Board
The Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc. was co-founded by dedicated CAGS parents Jennifer Wells and Michael Wells. Their passion and commitment to supporting families, advancing research, and raising awareness drive the foundation's mission.
Jennifer Wells
Co-Founder / board of directors
Mike Wells
co-founder / board of directors


Becky Puhl
board of directors
Scientific & Medical Advisory




Raymond Belanger Deloge
Translational Genomic Medicine Specialist/Community Outreach Coordinator
Rosamund Stone Zander and Hansjoerg Wyss | Translational Neuroscience Center | Boston Children's Hospital
Maya Chopra MBBS, FRACP
Director, Translational Genomic Medicine
Medical Co-Director, Neurogenetics and Neurodevelopment
Assistant Professor, Harvard Medical School


Sarah Chamseddine, MD
Pediatric Allergist/Immunologist Boston Children's Hospital


Kellen Winden MD, PHD
Instructor, Department of Neurology, Boston Children’s Hospital
Chris Gordon, PHD
Genetics of Developmental Disorders
Institut Imagine
Paris, France
Acknowledgments
We extend our heartfelt gratitude to our dedicated members, researchers, healthcare professionals, and donors.
Special thanks to our parent/patient champions and volunteers who moderate our Facebook group and share their valuable experiences. Your unwavering support fuels our mission and brings hope to families affected by CAGS.
Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc.
U.S. 501(c)(3) nonprofit organization | EIN: 33-2923434
All donations are tax-deductible as allowed by law. Donations are accepted in compliance with state charitable solicitation laws; where registration is pending, gifts are considered unsolicited.
Bank transfers please email: Jennifer.Wells@curecags.org
© 2025. All rights reserved.
Email: info@curecags.org
Registered Agent: registeredagent-dbh@shuffieldlowman.com
Want to donate by check? Make checks payable and mail to:
Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc.
1742 S Woodland Blvd. #409
DeLand, FL 32720
