Our Mission

To find treatments and a cure for Chopra-Amiel-Gordon Syndrome while fostering a global CAGS community.

Our Vision

A world where individuals affected by Chopra-Amiel-Gordon Syndrome have access to effective treatments and a supportive global network.

Meet the Board

The Chopra-Amiel-Gordon Syndrome (CAGS) Foundation, Inc. was co-founded by dedicated CAGS parents Jennifer Wells and Michael Wells. Their passion and commitment to supporting families, advancing research, and raising awareness drive the foundation's mission.

Jennifer Wells

Co-Founder / board of directors

Mike Wells

co-founder / board of directors

Becky Puhl

board of directors

Scientific & Medical Advisory

Raymond Belanger Deloge

Translational Genomic Medicine Specialist/Community Outreach Coordinator

Rosamund Stone Zander and Hansjoerg Wyss | Translational Neuroscience Center | Boston Children's Hospital

Maya Chopra MBBS, FRACP

Director, Translational Genomic Medicine

Medical Co-Director, Neurogenetics and Neurodevelopment

Assistant Professor, Harvard Medical School

Sarah Chamseddine, MD

Pediatric Allergist/Immunologist Boston Children's Hospital

Kellen Winden MD, PHD

Instructor, Department of Neurology, Boston Children’s Hospital

Chris Gordon, PHD

Genetics of Developmental Disorders
Institut Imagine
Paris, France

Acknowledgments

We extend our heartfelt gratitude to our dedicated members, researchers, healthcare professionals, and donors.

Special thanks to our parent/patient champions and volunteers who moderate our Facebook group and share their valuable experiences. Your unwavering support fuels our mission and brings hope to families affected by CAGS.